IPF Registry

IPF, or Idiopathic pulmonary fibrosis, is a rare but severe disorder where people frequently become short of breath and therefore have difficulty walking and doing daily activities. There is no cure and no current medications that help.

We don't know exactly how many people in Australia have IPF but we do know that no one hospital will have enough patients with IPF to help researchers come to better understand the disease or trial new treatments. The IPF Registry aims to enroll all Australians with IPF so that the information collected can help researchers to learn more about this serious disorder.

If you have Idiopathic Pulmonary Fibrosis, please ask your respiratory physician about the Registry during your next visit. Any further enquiries can also be addressed to Sacha Macansh at the Lung Foundation Australia on +61 (0)2 9515 3996.


Seeking Participants

Have you been diagnosed as having Idiopathic Pulmonary Fibrosis? If so, you are encouraged to joing this Registry. Please ask your respiratory physician about the Registry during your next visit. Any further enquiries can also be addressed to Sacha Macansh at the Lung Foundation Australia on +61 (0)2 9515 3996. Interested to find out more? Please contact Your respiratory physician during your next visit. Any further enquiries can also be addressed to Sacha Macansh at the Lung Foundation Australia on +61 (0)2 9515 3996.


Full Name

Australian Idiopathic Pulmonary Fibrosis Registry

Primary Investigator

Nicole Goh

Stream

Respiratory > Idiopathic Pulmonary Fibrosis

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Consider making a donation to help us learn more about idiopathic pulmonary fibrosis and other disorders. You can make an important contribution to the work of our research teams through a financial donation.



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