“I fell asleep driving my wheelchair”
Researchers at IBAS have found that more than 80 per cent of people with quadriplegic spinal injuries have sleep apnoea. It’s having a big effect on their lives, but many don’t know they have it, and they don’t know it can be treated.
We’re calling for everyone with quadriplegia to see a doctor if they are tired and fatigued, and we’ve produced videos demonstrating the impact on patients’ lives.
“I was so fatigued that I would fall asleep even when I was driving my wheelchair,” says Ben Gruter, who has T5 paraplegia and is a retired public servant. Today, his energy is restored and his grandchildren ride around the block with him.
“Our research found that 80 percent of people with quadriplegia have serious tiredness and fatigue due to sleep apnoea,” says Dr Marnie Graco who recently completed her PhD on the subject at the Institute for Breathing and Sleep (IBAS) at Austin Health and The University of Melbourne. “We found that most cases are undiagnosed, with patients just assuming tiredness is just part of the burden of spinal cord injury. So, we reached out to patients and asked them if we could tell their story, to encourage everyone with spinal cord injury to talk to their doctor about sleep apnoea.”
Sleep apnoea is a kind of breathing disruption during sleep that has been linked to serious health problems including constant tiredness, poor concentration, heart attacks and depression. It affects up to 25 per cent of the general population, but it is much more common among people with spinal cord injury.
“You might have sleep apnoea and not know it,” says Professor David Berlowitz, a physiotherapist at The University of Melbourne and IBAS. “If you snore, wake up tired, or you nod off during the day go and see your GP for a sleep study and, if needed, a treatment plan. Sticking to the treatment plan may be challenging but it can make a huge difference to your daily life.” A common treatment for sleep apnoea is the use of a Continuous Positive Airway Pressure (CPAP) machine during sleep.
“I love my CPAP machine, but I hate my CPAP machine,” says Kate Herd, an author and designer who has C6/7 quadriplegia. “Using CPAP means that I can wake up in the morning and feel like I’ve actually had a pretty good night’s sleep, I can do all the things I want to do in a day. I’m glad that I use it and I wish I’d started using it sooner.”
If you or someone you know with a spinal cord injury has been experience symptoms of tiredness, we advise that you talk with your GP for a sleep study and, if needed, a treatment plan.
There are videos which were produced with the support of the Transport Accident Commission (TAC). You can watch all five videos here.
For full media release details, go to https://www.scienceinpublic.com.au/media-releases/better-sleep
Posted 5 months ago
Interstitial lung disease (ILD) is a chronic lung condition that causes stiff lungs and restricts sufferers from taking a deep breath. Exercise in a gym, such as walking or riding a bike, can help make...
Each year in Australia 260 people sustain a SCI, with over half losing full function in their arms and legs (quadriplegia). In addition to the primary disability, there is a very high rate of Obstructive...
Sleep apnea is a condition where breathing is abnormal during sleep. There are two main forms of sleep apnea: obstructive and central. For obstructive sleep apnea, breathing is reduced because the airway...
Melbourne researchers have found that 80 percent of people with quadriplegic spinal injuries have sleep apnoea. It's having a big effect on their lives but they don't know they have it, and they don't know it can be treated.
The National Transport Commission (NTC) and the Cooperative Research Centre for Alertness, Safety and Productivity (Alertness CRC) have released the results of what is hailed as a world-first study into heavy vehicle driver fatigue.
AAMRI released its election statement calling on politicians to commit to three main priorities: ensuring the MRFF reaches $20 billion by 2020-21, provide continued strong support for the NHMRC, and develop sustainable and rewarding career pathways.
IBAS Director Anna Burke had barely got into the swing of her speech at the unveiling of her portrait at Canberra's Parliament House when the ringing of bells caused half her audience to hurry away.