“I was so fatigued that I would fall asleep even when I was driving my wheelchair,” says Ben Gruter, who has T5 paraplegia and is a retired public servant. Today, his energy is restored and his grandchildren ride around the block with him.
“Our research found that 80 percent of people with quadriplegia have serious tiredness and fatigue due to sleep apnoea,” says Dr Marnie Graco who recently completed her PhD on the subject at the Institute for Breathing and Sleep (IBAS) at Austin Health and The University of Melbourne. “We found that most cases are undiagnosed, with patients just assuming tiredness is just part of the burden of spinal cord injury. So, we reached out to patients and asked them if we could tell their story, to encourage everyone with spinal cord injury to talk to their doctor about sleep apnoea.”
Sleep apnoea is a kind of breathing disruption during sleep that has been linked to serious health problems including constant tiredness, poor concentration, heart attacks and depression. It affects up to 25 per cent of the general population, but it is much more common among people with spinal cord injury.
“You might have sleep apnoea and not know it,” says Professor David Berlowitz, a physiotherapist at The University of Melbourne and IBAS. “If you snore, wake up tired, or you nod off during the day go and see your GP for a sleep study and, if needed, a treatment plan. Sticking to the treatment plan may be challenging but it can make a huge difference to your daily life.” A common treatment for sleep apnoea is the use of a Continuous Positive Airway Pressure (CPAP) machine during sleep.
“I love my CPAP machine, but I hate my CPAP machine,” says Kate Herd, an author and designer who has C6/7 quadriplegia. “Using CPAP means that I can wake up in the morning and feel like I’ve actually had a pretty good night’s sleep, I can do all the things I want to do in a day. I’m glad that I use it and I wish I’d started using it sooner.”
If you or someone you know with a spinal cord injury has been experience symptoms of tiredness, we advise that you talk with your GP for a sleep study and, if needed, a treatment plan.
You can watch the videos here .
The videoos were produced with the support of the Transport Accident Commission (TAC).
For full media release details, go to https://www.scienceinpublic.com.au/media-releases/better-sleep
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